Wednesday, July 23, 2014

(Comprehensive Website Overhaul in Progress)

AXYS’s mission is to help individuals with one or more extra X and/or Y chromosomes and their families lead fuller and more productive lives.

Welcome to AXYS


How can we assist you?


IMPORTANT NOTE:  This is a helpline only.  Please do NOT call this number for general inquiries.

We are as close as your telephone and offer support through a network of volunteers for each of the conditions we serve. You may access this network by calling AXYS on our toll-free number from anywhere in the U.S. or Canada, (888) 999-9428, or from outside the U.S. at (303) 400-9040.  You may also send email to Please provide your email address, phone number and location.  International callers, provide your country code.  Please let us know if this is an emergency.

All general inquiries should be directed to  If you need to speak with someone by phone, please send your number along with your email message.

Sandra's Story

"Why should I support AXYS?"  "What has AXYS done for us lately?"
"How will AXYS use my donation?"

It Pays to Be A Member - Become a Member Today

Benefits of membership:

  • Free access to over 90 conference videos.  Streaming video can be viewed worldwide.
  • Free access to a new library of webinars.  Click for more information.
  • 10% discounts on conference registrationThe discount on the "first adult" registration fee alone more than covers the cost of an individual membership.
  • Exclusive access to join the $47 Club and unlimited use of AXYS’s current library of webinars.  Click for list.
  • Exclusive access to AXYS’s online forums.

Follow us on Twitter  Follow us on Twitter  @KSAgeneticorg

Subscribe to a Discussion Group

Tap into a network of hundreds of real people dealing with the same issues as you. AXYS offers several discussion forums that give you an opportunity to ask questions, exchange ideas, information, news, comments or whatever related to X and/or Y chromosome variations. Learn more about these discussion forums and register today.


Your Email Address is Vital


In these days of social media and telephone access to the internet, email contact is vital to running a nonprofit health advocacy group.  If you do not already receive regular emails from AXYS, please register your email address.  Send email to

Also, please register for our email newsletters and broadcasts.

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Important News


AXYS - A merger between KS&A and AAKSIS


Free Members-Only Webinar - RECORDING AVAILABLE

"Special Education and Disability Advocacy - Sooner, Not Later"  
with Stephanie James, JD  
RECORDED:  Tuesday, June 24, 2014, 8:00 PM EASTERN
Login and Click Here for More Info
Not a member?  Click here to join or renew.

FREE - Family Information Kits

AXYS is offering free family information kits to help parents explain X and Y chromosome variations to their children.  


The kits are provided with one of three different booklets written in age-appropriate language specifically for children with XXY, XYY or XXX, as well as a free copy of the Guidebook, "Living with Klinefelter Syndrome, Trisomy X or 47,XYY", for parents to read (US orders only).

Click for more information and to place your order. 

Books on X and Y Chromosome Variations from the eXtraordinarY Kids Clinic

The eXtraordinarY Kids Clinic released a series of four books for children with X&Y chromosome variations.

Click image to link to book offer.

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