One of the greatest challenges researchers face is finding qualified candidates who are willing to participate in clinical studies. Some researchers have resorted to consumer advertising techniques – using radio and TV ads and even billboards to attract subjects. Current hit-and-miss methods are ineffective and a tragic waste of resources. They are a barrier to finding the answers we so desperately need.
KS&A is pioneering a new, far more effective way to break through these barriers and match researchers with individuals who have an interest in clinical study participation. This innovative approach puts your privacy first - where you decide how best to connect with researchers of your choice.
Call to Action
Are you ready to help? Click on an “I’m Interested” button or “General Interest”. Choose the one associated with general research, or for a specific study. This will connect you to the PrivateAccess™ application, where you’ll register by setting privacy directives - granting private access to researchers as you feel appropriate - and answering a confidential medical history questionnaire. The whole process takes about 15 minutes.
Once your information is in the system, researchers - only the ones with private access - can view your anonymous health information and, only if you agree, contact you for study participation. Whether you elect to participate in a study is entirely up to you. So sign up now to view more information regarding clinical research and to register at PrivateAccess™.
The collaboration with Private Access is a significant milestone in KS&A’s efforts to better serve individuals with 47,XXY and/or Klinefelter syndrome, and our community of committed researchers. If you have any questions, please contact us by phone at (888) 999-9428, or by email at info@genetic.org.
Click here to get started now!
Whether you select this method or the one described below, the private access rights you grant in PrivateAccess™; make it easy and safe for you to hear about studies that might be relevant to you or your child. It’s totally free to you. You can change your privacy settings at any time, and whether you elect to participate in any study is totally up to you.
For questions, or if you have any problems in using these systems, please contact Private Access at (888) 917-7482.
Individual Research Studies Now Recruiting
Alternatively, you can review a list of research studies that are currently recruiting and decide which ones sound most interesting to you. This list is updated regularly, as new studies are added and older ones are filled. Once you see one that you think might be of interest, simply click on the “I’m Interested” button associated with that study to take you to PrivateAccess™, where you’ll be able to let this researcher know that you’re interested. You decide whether to tell the researcher your name or not, and your answers in the confidential health questionnaire will give them the basis to decide how well you might fit into their research. As an added convenience, you will also be able to decide if you would like any other researchers to be able to know about your interest in potentially relevant research. It’s totally up to you to decide how much you tell them, and who can find this information.