Thursday, April 24, 2014

Multidisciplinary Clinics

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There are currently two multidisciplinary clinics for X and Y chromosome variations (sex chromosome aneuploidy) in the USA.

A multidisciplinary clinic provides a comprehensive, integrated approach to caring for individuals.  Patient visits are organized to provide access to all necessary medical disciplines in one visit.  Professionals then meet, discuss each case and collaborate to develop a fully coordinated care plan tailored to the patient.  Clinics also provide "take-home" materials for local medical, therapy and school professionals. 

A visit to one of these clinics may be the most valuable thing you can do to support your child or care for yourself.

ALL-CONDITIONS CLINIC
Denver, CO is home to the eXtraordinarY Kids Clinic at Children's Hospital, the first multidisciplinary clinic dedicated to sex chromosome aneuploidy.  This clinic cares for all X and Y chromosome variations.  The focus is pediatrics and young adults.
The eXtraordinarY Kids Clinic has hosted the KS&A/AAKSIS families' conference in 2008, 2011 and 2013.
Click for website

ALL-CONDITIONS CLINIC
Emory University in Atlanta, GA is home to the eXceptional Kids Clinic at EmorY.  This is the second multidisciplinary clinic dedicated to sex chromosome aneuploidy.  This clinic cares for all X and Y chromosome variations.  The focus is pediatrics and young adults.
Click for more information

47,XXY (Klinefelter Syndrome) CLINIC
Johns Hopkins in Baltimore, MD is home to the Johns Hopkins Klinefelter Syndrome Center.  This center focuses on XXY in both adults and children.
Click for more information
The Johns Hopkins Klinefelter Syndrome Center will host the next KS&A/AAKSIS families' conference in 2015.

Clinic visits are so valuable that KS&A/AAKSIS changed its conference schedule from once a year to once every two years to enable families to invest in a clinic visit.


  
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