In 2015, the AXYS Board of Directors voted to approve the development of a consortium of clinics, organized, coordinated and funded, in part, by AXYS. Though each clinic operates independently, as members of a consortium they collaborate with one another, share informational resources, and have the opportunity to participate in joint research projects. In addition, AXYS organizes annual meetings of the consortium at which members meet to discuss topics important to the X and Y chromosome variation community. The goal of AXYS is to ensure that all families impacted by any of the chromosome variations have access to the best available evaluation and treatment or treatment recommendations. The AXYS Clinic & Research Consortium is one of the important ways we are achieving that goal.
For help in determining which clinic might be most appropriate for you or your family, please read the following and/or call us at 1-888-999-9428.
Different Types of Clinics
Due to the many X and Y Chromosome variations, not all clinics specialize in all conditions. Following is a listing the clinics in the ACRC. The specific conditions and patient ages served by the clinic are noted in the description.
Some clinics are multidisciplinary in their services. A multidisciplinary clinic provides a comprehensive, integrated approach to caring for individuals. Patient visits are organized to provide access to all necessary medical, psychological, and therapy disciplines in one visit. Professionals then meet, discuss each case and collaborate to develop a fully coordinated care plan tailored to the patient. Some clinics also provide "take-home" materials for local medical, therapy and school professionals. Please review each clinic’s website and/or description of its services for information regarding its specific approach to seeing patients. If unsure about the types of services provided, be sure to ask at the time an appointment is scheduled.