To All Persons Interested in Klinefelter Syndrome or Other X and Y Chromosome Variation Conditions:
It is estimated there are more than 1,000 individuals in Nebraska that may have a genetic variation that includes an extra X or Y chromosome. Less than 25% of these individuals have been diagnosed accurately and even fewer are receiving appropriate health and educational support. As a result, many people and families face difficult challenges in finding information and services that could make a significant improvement in their lives. My wife and I have personal experience with this since our adult son was not correctly diagnosed until age 24 with 47,XXY (otherwise known as Klinefelter Syndrome). We spent many years and thousands of dollars trying to find out what was causing his learning, behavior and health issues and endured a lot of unnecessary pain and problems until we finally obtained this diagnosis and were able to initiate appropriate treatment
If you are an adult with an x and y condition or a parent with a child that has this condition and would be interested in attending a support group meeting or to just learn more about the AXYS organization and resources available to assist you, please let me know. Inquiries from surrounding states are also welcome!
You are welcome to contact me personally with any questions you may have firstname.lastname@example.org or 402-681-5455.
Member, AXYS Board of Directors
Nebraska Support Group Leader