Past Conferences and Events

Below is a list of previous KS&A conferences and other major events, together with a list of their respective speakers and presenters.  Where available, copies of conference proceedings and materials may be ordered from KS&A for a modest fee.

October 19, 2007
New York City, NY (Weill Cornell Medical College)
Providing Excellence in Medical Care for Children and Adults with Klinefelter Syndrome through Advancements in Reproductive Biology and Genetics
Recorded proceedings of the event (available on DVD) are on sale now!

• Peter N. Schlegel, M.D.
  Overview of current developments and directions of research in patients with infertility and Klinefelter syndrome




• Peter J. Stahl, M.D.
  Klinefelter syndrome – Clinical characteristics and modern model of management




• Darius A. Paduch, M.D., Ph.D.
  New directions in translational research – Overview of current and future basic science projects. Overview of magnetic resonance spectrometry study in assessment of testicular function




• Paula E. Cohen, Ph.D.
  Meiotic errors and fate of the spermatogonia – Can we direct spermatogonia toward normal development?




• Matthew Hardy, Ph.D.
  Leydig cell stem cells and steroidogenesis – Can we preserve Testosterone production in men with Klinefelter syndrome?




• Alex Travis, Ph.D., VMD
  Growing sperm in nude mice – From a futuristic dream to reality




• Darius A. Paduch, M.D., Ph.D.
  Closing remarks and summary of presentations: What we know, what we learned, what we need to do in the future

October 13 - 15, 2006
Philadelphia, PA (Thomas Jefferson University Campus)
National Conference on XXY and Klinefelter Syndrome
Conference DVDs and binder are on sale now! .

• Alan D. Rogol, MD, Ph.D.
  Advances in Androgen Therapy at Puberty




• Carole Samango-Sprouse, Ed.D.
  Understanding the Phenotypic Presentation of Boys with XXY and How Targeted Treatment Can Promote Recovery and Optimum Development




• Andrew R. Zinn, MD, Ph.D.
  Genetic Effects of Extra X and Y Chromosomes




• Rhoshel K. Lenroot, MD
  X and Y Chromosome Variations: Insights from Brain Imaging




• Judith L. Ross, MD
  Results from Evaluating Infants and Boys with XXY: What Do Our Studies Tell Us?




• Nicole Tartaglia, MD
  Medical Treatments of Behavioral & Emotional Symptoms in XXY and XXYY




• Margaret Lutz-Armstrong, M.A., CCC-SLP
  Speech and Language Profile and Treatment for Children with X and Y Chromosome Variations




• Shahal Rozenblatt, Ph.D.
  Learning & Emotional Issues in Children & Adolescents with XXY:  A Neuro-psychological Perspective




• Shelley Wallock, Dr.P.H., OTR/L
  Exploring Family Occupations, Routines, and Rituals: Strategies to Address the Impact of Including a Sensory Sensitive Child




• Stefan and Chris Schwarz
  Father and Son, Each Born with an Extra X Chromosome – A Unique Family’s Perspective on Parenting, Life and the Lessons to be Learned from Them




• Darius Paduch, MD, Ph.D.
  Advancements in Urological Care and Diagnostic Technology Focused on Improving Hormone Management and the Prospects of Fertility




• Jay Lucker, Ed.D., CCC-A/SLP, FAAA
  Understanding Auditory Processing Abilities in Boys with 47XXY




• Virginia Cover, MSW, MBA
  Transition to Adulthood




• Vanessa Edwards
  Understanding the Evaluation and IEP Process




• Ilene Fennoy, MD and Lennie Wilson, RN, CS
  XXYY Workshop

March 3 - 5, 2006
Sacramento, CA (UC Davis Campus)
[First Ever] National Trisomy X and XYY Conference
Co-sponsored by UC Davis M.I.N.D. Institute
Conference DVDs and binder on sale now!

• Patricia Jacobs, D.Sc., FRS
  Trisomy X and XYY Syndromes: An Overview




• Terry Hassold, Ph.D.
  The Genetics of Trisomy X and XYY Syndrome




• Carole Samango-Sprouse, Ed.D.
  The Child With Sex Chromosome Disorders: Gifted With Learning Differences: How to Promote Recovery and Optimal Developmental Achievement
(Hear an excerpt now)



• Laura Greiss-Hess, MS, OTR/L and Kerrie Lemons-Chitwood, MA, CCC-SLP
  Speech and Occupational Therapy Strategies in Trisomy X and XYY Syndrome




• Nicole Tartaglia, M.D.
  Health and Development in Trisomy X and XYY Syndrome




• David Hessl, Ph.D.
  Identification and Treatment of Depression and Anxiety in Individuals with Trisomy X and XYY Syndrome




• Dr. Randi Hagerman, M.D. (Hear an excerpt now)
  Medication Treatments Used in Trisomy X and XYY Syndrome




• Jay Lucker, Ed.D., CCC-A/SLP, FAAA (Hear an excerpt now)
  Auditory Processing Disorder and the Trisomy X and XYY Population




• Jay Geidd, M.D.
  Sex Chromosome Effects on Brain Development: New Views from Imaging




• Karen Riley, Ph.D.
  A Sensible Approach to Behavior for Children and Adolescents




• Susan Bacalman, LCSW
  Social Skills Development Challenges for Children and Adolescents




• Lennie Wilson, RN, CS
  Too Much of a Good Thing: Positive Intention and Reframing Trisomy X and XYY




• Danielle Sanchez
  Structuring an IEP that Meets Your Child’s Unique Needs

March 4, 2006
Sacramento, CA (UC Davis Campus)
Patricia Jacobs Lifetime Achievement Award Dinner
Co-sponsored by UC Davis M.I.N.D. Institute
Event DVD on sale now!

• Patricia Jacobs, D.Sc, FRS
  Patricia Jacobs Lifetime Achievement Award
  Acceptance Address: How We Got Here and Where We Need to Go

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October 6 - 8, 1995
Chevy Chase, MD (Holiday Inn)
A Road to Understanding
Co-sponsored by Johns Hopkins University

• Adrian Dobs, MD (Adult Endocrinologist, Johns Hopkins)
  Medical Management of the Adult with Klinefelter Syndrome




• Ronald Swerdloff, M.D. (Endocrinologist, Harbor-UCLA)
  Mechanics of How Testosterone is Used in the Human Body




• Gary Berkovitz, MD (Pediatric Endocrinologist, Johns Hopkins)
  Medical Management of the Child with Klinefelter Syndrome




• Julie Rothberg (Genetic Counselor, Johns Hopkins)
  The Genetics of Klinefelter Syndrome




• Barbara Fairfield (Marriage and Family Therapist, Private Practice)
  Encouraging the Adolescent with Klinefelter Syndrome




• Mark McDermott (President of the American Academy of Adoption Attorneys)
  The Adoption Option




• Karen Beck (Genetic Counselor, Medical College of Virginia)
  Psychosocial Behaviors in Children with Klinefelter Syndrome




• Ken Wessel (Psychologist, Johns Hopkins)
  A Workshop for Dads of Klinefelter Sons Only




• Panel of XXY Adults (Panel Chair: David Wright)
  Gender Identity Panel




• Carole Samango-Sprouse, Ed.D. (Director of Infant & Child Studies, National Medical Center) Klinefelter Syndrome in the School




• Darrell Hache (XXY Adult, Member of International Expressive Art Therapists Association) Psychological Theories and Pictorial Results of Using Art and Music as Therapy




• Panel of XXY Adults and Endocrinologists
  Testosterone Replacement Therapy

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October 1 - 2, 1994
Anaheim, CA (Doubletree Hotel)
Co-sponsored by Human Growth Foundation and Serano Symposia

• Ronald Nagel, MD (Pediatric Endocrinologist)
  The Physiology and Treatment of Klinefelter Syndrome




• Ronald Swerdloff, M.D. (Endocrinologist, Harbor-UCLA)
  Current Testosterone Treatment in Adolescents and Adults with Klinefelter Syndrome




• Panel of Klinefelter syndrome adults and their families
  Compensating Techniques for Those With Klinefelter Syndrome

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Please be patient as we are still working on this portion of the site

In the future, we plan for this section of the website to provide information concerning all of KS&A’s other previous conferences.  We hope that you will return again as we continue to add information such as this to the website. 

If you have any suggestions concerning ways that we can improve this site, or if you have some extra time and would care to take responsibility for writing a section such as this one so that others can enjoy it sooner, see Giving Your Time.