Share Your Story

Please be patient as we are still working on this portion of the site

So much of what makes our community wonderful and special is the individuality and uniqueness of each individual’s experience.  In the future, we plan for this section of the website to provide a gallery of stories, many including pictures, concerning individuals born with one or more extra X and/or Y chromosomes, and their families.  Our hope is that these stories will help answer important questions that persons who recently received a diagnosis ask concerning these conditions, and set straight a number of the most common misperceptions.

We hope that you will return again as we continue to add these personal stories to the website.  Until we have implemented this section, the quotes that appear with photographs at the top of each page of our site provide a summary, taken from the archives of KS&A’s online discussion groups.  Persons who care to learn more about these conditions are encouraged to read the personal accounts provided by a number of KS&A’s officers, directors and volunteers in connection with their biographical information contained on this site.  These include:

Beyond reading these stories, we encourage persons seeking additional information to speak with a Program Coordinator or Program Assistant, and/or to subscribe to one or more of KS&A’s online discussion groups in order to network with other individuals and families facing similar challenges.

If you would like to contribute your story - and we hope that you will - please send us a Word (.doc) or simple text (.txt) document that is no longer than four type written pages in length including photograph(s) to the .  Your story could include tales of victory, struggle, cutest quirks and/or advice to others.  If you wish to attain a certain amount of anonymity, you are welcome to avoid using your (or your child’s) full name and town in the materials.  Also, we ask that you not mention the names of specific doctors (if you would like to make a physician referral, please use the Recommend a Health Professional feature). 

Please accompany your story submission with an executed copy of KS&A’s Standard Consent and Release form whether or not you are including pictures.